Telling others was draining

Physically, and emotionally, it was difficult know that this was certainly a disease that could result in my death at some point, and adjusting to that thought. And it was also really exhausting telling people that I cared about, because every time I told someone, they were very upset and it took a lot of energy. And so there were some people, some good friends, that I didn't tell, at least in that initial period. Not that I was hiding anything, but just that it took so much energy every time I went through the story with them.

 © 1999 Michigan State University
Communication Technology Laboratory