The diagnosis is devastating and you're not thinking at all. So its very important when you go to a doctor to take along someone who will take notes about what the doctor said. I was a patient advocate for a patient last year. She called the doctor and said "I'm having a patient advocate come with me." And its surprising how different that woman was treated because I was there. He tried to explain medical facts that I really don't think he would have done without me there. She had a difficult time understanding, and I saw that they weren't getting it, so I finally said to him we're going to lunch afterwards and I will explain it. That type of support is so important.