Artificial
feeding is not feeding in the sense that we normally use the word.
Instead, it's a way of getting calories and nutrients into the body
when a person can't eat naturally. It may involve the use of a tube
inserted into the stomach through the nose, or inserted surgically
through the skin and stomach wall. The tube can deliver nutrition,
water and medications. Fluid and medications can also be delivered
through an intravenous (IV) line. Artificially provided nutrition
and water (hydration) serve different but related purposes, and
are often discussed as a single topic.
What
about Terminal Illness and Artificial Feeding?
If
your disease is making it difficult to swallow or get food down,
artificial feeding may be a good choice. By delivering the calories
your body needs it can help you remain comfortable and enjoy the
time you spend with family or on other pursuits.
But
if there's nothing getting in the way of eating except your lack
of appetite you need to look at the question of feeding and eating
in another way.
Losing
interest in eating is part of the body's natural process of shutting
down. It is one of a number of changes that occur in circulation,
breathing and other areas as the body prepares to stop its normal
functions. These changes make the physical part of dying easier
and more peaceful and taking in less food and water definitely contributes
to that. So if you don't feel hungry and don't feel like eating,
that's a signal from your body that's worth paying attention to.
And if you've already started artificial feeding, you'll want to
think about stopping it if it begins to cause discomfort or you
feel that it's only prolonging your dying.
Those
around you may take your loss of appetite as a sign that they should
get food into you by any means available, but studies show that
pushing calories and fluids on a dying patient doesn't extend life.
In fact it can have negative effects like encouraging tumor growth
in cancer patients and causing uncomfortable swelling and shortness
of breath. Let your family and caregivers know that you simply don't
want food and say clearly that you've made your decision so that
you can reach your goal of dying well.
What
Are the Drawbacks of Artificial Feeding?
The
use of a feeding tube may result in pneumonia, infection or
stomach ulcer
A
patient who repeatedly removes a tube may have to be restrained
to prevent injury
Artificial
feeding may interfere with the body's natural process of shutting
down
Does
not prolong life, but may prolong the dying process
Maintaining
artificial feeding and fluids can make some symptoms worse
Will
I Starve to Death?
Refusing artificial feeding doesn't mean you will die of starvation
or die in pain. When you're not hungry and don't want to eat, you're
not going to suffer from not eating. In fact, the more immediate
effect of stopping tube feeding is dehydration which actually has
benefits at the end of life. For example, less fluid means:
less
congestion and therefore easier breathing
less
pressure around tumors and therefore less pain
less
urination and therefore less need for toileting
People who become dehydrated near death usually experience dry mouth but not thirst. Dry mouth can easily be relieved with ice chips or small sips of water. All of this is just as true in the case of a person who is no longer conscious and able to communicate. Malnutrition is not a worry, and dehydration, when accompanied by care for minor problems like dry mouth and possible sores, may bring comfort, not suffering.
What
about Families that Insist on a Feeding Tube?
Because feeding has been a symbol of life and nurturing throughout human history, withholding food might make your family feel as if they are abandoning you. So it can be hard for them to give up feeding even when it's through a tube and even when you've said you don't want it. This becomes an even bigger problem when you're no longer able to communicate. Family members may be holding on to the idea that feeding you is a way of expressing their love and caring, especially if they think that you'll "starve to death" otherwise. If you decide that you don't want artificial feeding at a point when you're no longer conscious, tell your family in advance that you don't believe it will prolong living in a way that you want. And say that you surely don't want it to prolong your dying.