| Completing a Life Resources and Related Sites |
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If you have an open connection to the internet, clicking on a link below will open a new window and take you to a new web site and to information outside the control of the "Completing a Life" project team.
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Related Sites |
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• The American Hospice Foundation supports programs that serve the needs of terminally ill and grieving individuals of all ages |
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General Resources |
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• Dying Well: Peace and Possibilities at the End of Life, by Ira Byock, M.D. Riverhead Books, New York, 1997. |
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• Dying Well |
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• Final Passages: Positive Choices for the Dying and their Loved Ones, by Judith Ahronheim, M.D. and Doron Weber. Simon & Schuster, New York, 1992. |
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• Final Thoughts |
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• Growth House |
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• Handbook for Mortals, by Joanne Lynn, M.D. and Joan Harrold, M.D., Oxford University Press, New York, Oxford, 1999. |
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• Handbook for Mortals (online excerpts) |
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• On Our Own Terms |
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• Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life, by Daniel R. Tobin, M.D. with Karen Lindsey. Perseus Books, Reading, Massachusetts, 1999
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• To Die Well: A Holistic Approach for the Dying and their Caregivers, by Richard Reoch, HarperPerennial, New York, 1996. |
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• Walking the Advanced Illness Road (The National Center for Advanced Illness Coordinated Care) |
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Pain Resources |
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• American Pain Foundation |
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• Easing Cancer Pain |
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• Stop Pain |
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• You Don’t Have to Suffer: A Complete Guide to Relieving Cancer Pain for Patients and their Families, by Susan S. Lang and Richard B. Patt, M.D., Oxford University Press, New York, Oxford, 1994. |
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Hospice and Palliative Care Resources |
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• Hospice Cares Online Community |
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• The Hospice Choice: In Pursuit of a Peaceful Death, by Marcia Lattanzi-Licht with John J. Mahoney and Galen W. Miller. Fireside, New York, 1998. |
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• Hospice Foundation of America |
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• The Hospice Handbook, by Larry Beresford. Little, Brown and Company, Boston, Toronto, London, 1993. |
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• Hospice Net |
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• National Hospice Foundation
National Hospice Foundation brochures available online and by phone (800-338-8619): |
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• Selecting a Hospice Program |
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• Communicating Your End-of-Life Wishes |
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• The Medicare Hospice Benefit |
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Advance Directives Resources |
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• Aging with Dignity/Five Wishes (888-5-WISHES) |
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• Partnership for Caring |
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• US Living Will Registry |
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Organ Donation Resources |
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• Coalition on Donation
Brochure by phone (800-355-7427) |
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Diseases |
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Cancer Resources |
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• American Cancer Society (800-ACS-2345) |
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• CancerCare
CancerCare brochure available online and by phone
(800-813-HOPE) |
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• A Helping Hand: A Resource Guide for People with Cancer |
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• National Cancer Institute’s CancerNet |
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Dementia Resources |
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• Alzheimer’s Association (800-272-3900) |
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Heart Disease Resources |
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• American Heart Association |
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• American Heart Association: Living with Heart Failure |
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HIV/AIDS Resources |
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• The Body: An AIDS and HIV Information Resource |
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Kidney Disease Resources |
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• National Kidney Foundation (800-622-9010) |
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• National Institute of Diabetes & Digestive & Kidney Diseases |
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Liver Disease Resources |
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• American Liver Foundation |
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Lung Disease Resources |
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• American Lung Association |
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Neuromuscular Disease Resources |
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• ALS Association
(Amyotrophic Lateral Sclerosis – Lou Gehrig’s Disease)
(800-782-4747) |
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Financial, Insurance, Legal Resources |
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• Eldercare Online |
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• Funeral and Memorial Societies of America/Funeral Consumers Alliance |
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• HELP (Healthcare & Elder Law Program) |
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• Medicare (800-MEDICARE / 800-633-4227) |
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• National Center for Home Equity Conversion
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• US Department of Housing and Urban Development
(888-466-3487) |
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Communication Resources |
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• Talking with Your Doctor: A Guide for Older People
National Institute on Aging
Order by phone (800-222-2225) |
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Children Resources |
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• How to Help Children Through a Parent’s Serious Illness, by Kathleen McCue, MA, CCLS, with Ron Bonn. St. Martin’s Press, New York, 1994. |
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Ethical Wills Resources |
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• Ethical Wills: Preserving Your Legacy of Values |
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Caregiving Resources |
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• Caregiver Survival Resources |
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• Caregiving: Hospice-Proven Techniques for Healing Body and Soul, by Douglas C. Smith. Macmillan, New York, 1997. |
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• Eldercare Locator (800-677-1116) |
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• "I Don’t Know What to Say…": How to Help and Support Someone Who Is Dying, by Dr. Robert Buckman, with contributions by Ruth Gallop, RN and Rev. John Martin. Little, Brown and Company, Boston, 1989. |
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• National Alliance for Caregiving |
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• National Family Caregivers Association |
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• Web of Care |